DAUGHTER OF CBD PATIENT IN CALIFORNIA PENS LETTER TO MIRACLE FOR MOM

My mother, Josefina, was diagnosed with corticobasal ganglionic degeneration (CBGD or CBD) in November of 2016.  This March, she will turn 64. Her symptoms, however, began to present in her late 50s.  This disease has slowly taken away her mobility, her speech, and her independence.  This disease is rare affecting only about 5-6 in 100,000 people, and supportive resources are limited.

I wanted to to bring awareness to this terrible disease, so for my birthday earlier this year, I chose to raise money for Miracle For Mom through a FaceBook-based fundraiser.  MFM is a non-profit organization that supports individuals and families affected by rare brain diseases.  Within a week, we raised $895.  I was truly amazed and humbled by the amazing response from family, friends, and friends of friends.

MFM was able to provide my mom with a reclining wheelchair.  Because of her CBD, my mom has difficulty holding her head up. My dad had placed an old cookie sheet padded with a towel behind the backrest of her old wheelchair to help keep her head up. In her new chair, her head is supported, and she can also fully recline back as well. Something like this may not mean much to some, but this wheelchair has been so helpful not only for my dad who is her full-time caregiver, but for my mom’s quality of life as well.  

On behalf of my family, I would like to thank Miracle For Mom for the work they are doing for those affected by debilitating brain diseases.

Sincerely,

Johanna Littlejohn

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Miracle for Mom Foundation Presents $20,000 Check to Emory Brain Health Center

To all of our donors and supporters, thanks to your generosity and financial support, the Miracle For Mom Foundation was able to proudly make a $20,000 donation to the Emory Brain Health Center in Atlanta to be used for clinical trials and research for a cure of all debilitating brain diseases! We hope you will continue to support our efforts to find a cure!

Click on the link to watch our presentation which was featured on CBS46 News in Atlanta.  

2018 MIRACLE OPEN CHARITY GOLF TOURNAMENT - Stone Mountain Golf CLub

REGISTERED GOLFERS WILL BE ABLE TO ATTEND THE FOLLOWING:
• Player’s Party & Silent Auction: Thursday, April 19, 2018  |  7:00-9:30 pm
• Golf Tournament: Friday, April 20, 2018  |  10:00 am
• P
ost dinner party & awards ceremony immediately following golf

FOURSOME: $600

Golfer Names:

FOURSOME WITH CELEBRITY: $850

(This includes 4 golfers + a sports celebrity)

Golfer Names:

SPONSORSHIPS:

Sponsorship Level